“With research, possibilities are limitless”
The Rare Disease Day (RDD) takes place every last day of February and it is the occasion for the rare disease community to come together to increase awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives. This year the Rare Disease Day theme is research.
On 28 February 2017, the BLACKSWAN Foundation and the RE(ACT) Community take part to the RDD tenth edition to advocate for more research on rare diseases. Rare disease research is often the only hope for patients and it is crucial to increase prevention, diagnosis and treatments for rare diseases.
Over the last few decades, rare disease research have increased, but it must not stop there, since only 5% of rare diseases have an approved treatment. Rare Disease Day 2017 is the opportunity to call upon policy makers for specific policies to ensure access to health for people living with rare diseases.
Join us in supporting research on rare diseases, watch the official video of the Rare Disease Day and be part of the change signing the #RAREvolution petition.